Information Material

What is MDS – comprehensive information booklets for patients:

Newsletters:

Physician and nurse presentations given at our Patient Forum Events:

  • Current treatment in MDS – the Irish Perspective – Dr Helen Enright, Dublin, Ireland 17/06/11
  • Transplantation - Transplantation for Myelodysplasia – Dr Catherine Flynn Consultant Haematologist St James’s Hospital, 17/06/2011
  • Current treatment in MDS – the Scottish Perspective, Edinburgh 20/05/11
  • Presentation: Welcome to MDS UK Patient Support Group Patient and Family Forum, Cambridge 12/11/10
  • MDS and Fatigue - Presentation: Making the Most of your Energy & Taking Control of Fatigue, Cambridge 12/11/10
  • Blood transfusions - Presentation: Understanding myelodysplasia and Introduction to Blood Transfusion
  • Quality of Life - Presentation: What is Quality of Life?
  • General MDS UK Presentation, Patient Support Group Information, London 24/09/10
  • Dr Chris Dalley – Royal Hallamshire Hospital, Sheffield, London 24/09/10
  • High Risk MDS and hypomethylating agents – Dr Kavita Raj,  Consultant Haematologist Guys and St Thomas’ Hospital, London Sept 2009

    Our display information about MDS UK Patient Support Group:

    • Download our leaflet regarding MDS – stocks to be ordered via our main office
    • Poster for display in hospital waiting rooms – feel free to print and use – or request a laminated copy via our office
    • Want to start your own local MDS group for informal chat and mutual support ?   Download 2 documents: Tips and guidelines to follow, as well as a poster you can adapt and use for the hospital or GP waiting room: Patient Support Group Guidelines and a Poster for display in hospital or GP waiting rooms

    Other helpful information material:

    • If you are receiving the treatment azacitidine/Vidaza – and possibly experience a rash at the injection site, evening primrose oil can help.  Please read the following information and always check with your nurse or physician firstEvening Primrose Oil