Donations to date
See below for our donations gallery. Listed are the very generous donations we receive – including events and memorials.
Thank you to everyone who continues to support MDS UK.
In memory of Margaret and Edward Gilfillan
A very kind donation was recently made by Alex Gilfillan, in memory of his mother Margaret.
Margaret’s husband Edward was an MDS patient.
Sally & Glyn Jones Gosport Christmas donation
Glyn Jones will be having a transplant sometime in May/June 2015.
At Sally’s office they very kindly decided not to send each other Xmas cards but to donate the money to charity, split between a local hospice and MDS.
The picture shows all Sally’s generous work colleagues.
Thank you everyone !
Fraser’s “Shave for a cure”
Christina Fowler, an MDS UK member and King’s patient, told us that her grandson Fraser very bravely and selflessly volunteered to shave his lovely blond curls as part of the fundraising event at his school – St John’s College in Hamilton, New Zealand. More information on the event available here - with the picture of the smiling teenager at the bottom of the page. In total over $5000 were raised to help those with leukaemia and other blood cancers in New Zealand. We admire Fraser’s dedication and desire to help and would also like to thank Christina and her family in UK for their continued support and ongoing donations to MDS UK. See right for a picture of Fraser and his proud grandma – Christine.
We received some very kind donations from friends and family in memory of Brian Seal who sadly passed away from MDS on 18/01/14. Daughter Liz Seal told us her Dad had put up a very brave fight over the two years he was ill, with hardly any complaint. “It is obviously a very sad loss for my mum, Margaret, brother, Matthew and me. I hope the money helps in any way it can, as MDS is an awful illness and I hope we get a cure one day soon. My Dad had just made his 77th year.” We thank Liz and her family and friends for the kind donations.
John Scott from Chorleywood, Hertfordshire passed away suddenly on the 14th October 2013.
Daughter Anna sent us these lovely words put together by the whole family – as well as a great photo of John on holiday on Tresco on the Isles of Scilly, a place he adored:
“His friends and family gave donations to help the continued work of MDS UK. During John’s battle with myelodysplasia, MDS UK was a source of information and comfort and the family feel it is important that this work continues to help others affected by this illness. John was a wonderful husband, father and grandfather. Since retiring from his job as a Finance Director in 2000 he devoted his time to his many interests – his family, gardening, golf, bridge and travelling. He was always willing to make time for those around him and to give the benefit of his advice and experience. He was genuine, honest and loving. His passing leaves a large hole and he is truly missed by many people.”
MDS UK would like to thank all the family and friends who contributed to the donations – and for their kind words about our work. Thanks to this type of donations, we can maintain our assistance to other patients and their families.
Pauline very sadly passed away recently. Pauline used to communicate regularly with our Anglia group coordinator Chris, who told us: “Pauline was a very brave lady, who having overcome breast cancer many years ago, was then unfortunate enough to get MDS. Pauline fought a long hard battle with MDS, but sadly she lost her fight for life on Sunday 9th March. Pauline will be missed by those people her presence touched from the Anglia Region MDS Support Group.”
Her daughter Julie sent us a lovely photo to remember her by. Thank you.
Donations in memory of Stella Weale
MDS UK received another kind donation from the friends and family of Stella Weale. We would like to pay tribute to Stella by posting few words from her daughter, Helen Wilson:
“Stella Weale from Kidderminster sadly passed away in November 2013 and her friends and family gave donations to help support the work of MDS UK. Through Stella’s brave fight against MDS, her family understands very well the importance of providing support and advice to MDS patients and their families, raising awareness of the condition and above all, of improving treatments for MDS.
Anyone who ever met Stella will tell you what an elegant lady she was and she was well-known for her great passion for music. She adored singing and had a truly beautiful voice. Stella’s family was the centre of her universe and she was a loving mother to 5 children and a grandmother to 13 grandchildren. Stella will be truly missed by all those who had the privilege of knowing her.”
We are glad to hear that we were able to help Stella and her family cope with MDS. We thank Helen Wilson and her brother Mr Woodruffe-Peacock as well as their family and friends for their support and donations.
Meath Association – in memory of Padraic Lynch
Another generous donation was made by the representatives of the Irish Meath Association and relatives and friends of Padraic Lynch, who sadly passed away in September 2012.
£700 was collected during a their 2013 buffet dance.
MDS UK gratefully received the donation handed over in person by Pádraic’s widow and Meath Association Secretary, Mary Lynch, the Treasurer Kathy Sleven and the Chairperson Bernadette Noon. It was a real pleasure to meet them all at our office in King’s College Hospital, and express our gratitude for their continued support.
Many thanks to the Meath Association, those involved in the event, and all the kind donors.
Here is a link to the walking map: http://www.west-highland-way.co.uk/theroute.asp
They raised funds specifically to increase awareness of Graft Versus Host Disease, which can affect patients after a bone marrow transplant. They raised a fabulous £1,020.
Judy Woolfenden, MBE
Donations have just been sent to MDS UK, collected by the friends and family of the wonderfully positive and feisty Judy, who sadly passed away earlier this year. Judy had been in touch with MDS UK for a few years, fundraising and generally raising awareness of MDS and disabilities. We will add some extra details about her life and achievements shortly. She absolutely made the most of her time and energy, despite many challenges and obstacles. She was also photographed as part of the Life Beyond Limits Project, which campaigned for access to treatment for all MDS patients – whatever their age. Thank you to her niece, her friend Brian and all who contributed to her memorial fund.
Goodland Diamond Anniversary
We received some very kind donations from the Goodland family, to celebrate the 60 years of marriage of Revd Patrick and Beryl Goodland. The thanksgiving service for this Diamond Wedding Anniversary took place in August 2013 and was attended by their children, grand-children and great grand-children. Donations were collected for 3 charities – MDS UK, MacMillan and Peace and Hope. MDS UK gratefully received £836 – we thank the family and all their friends for these donations – and wish Patrick and Beryl many more happy years together.
Special thanks to all the daughters – Hilary, Brenda and Heather.
Janet Grainger set up a page in memory of her husband Ken.
Janet and Ken had contributed to the MDS online forum for a long time. They received – and gave – a lot of support that way. We thank Janet for her support to both MDS UK and other members of our MDS community – and hope she will maintain those great contacts. Also many thanks to the family and colleagues of Janet and Ken for their donations and wonderful words about Ken.
Donations in memory of Angelo Pullara
Franco Pullara has set up both a fundraising page and a Facebook page in memory of his dad Angelo. The family wanted to have a place where everyone would be able to share their memories of him – and have an opportunity to raise funds and awareness of MDS.
Franco added: The MDS support group did a lot to help my Dad and our family throughout his illness.
Many thanks to the family and friends for the donations to MDS UK.
Ray Howell’s headshave!
Ray who is a butcher in Birmingham is planning a headshave later on this year. He has also set up a donation box in his shop – and many of his long-standing customers have already generously contributed.
We will add a new photo of Ray – with longer hair – and of course after the hair comes off!!
Australia has a now traditional massive head-shave event every year – maybe Ray will start a trend here?!
Thank you Ray – and look forward to more photos and updates!! Read more news on Ray on our Event page:
Donation in memory of Joan Mary Ballard
Emma Davies set up a special fundraising page in memory of her Grandma Joan Ballard – who passed away on the 9th May 2013.
She said: “My Grandma took great comfort and support from your site so our family would now like to give back to you. For those of you who knew her as a friend, and there were many, you would know that she was a loving, kind and generous lady who was always ready to listen and offer support and comfort.”
Emma also says she will hopefully also be organising a fundraising event in the near future.
We are glad to hear that we were able to help Joan and her family to cope with MDS.
We thank Emma and all of the family and friends of Joan for their very kind donations in support of MDS UK.
Amsterdam Marathon Runners – Celgene Amsters
The Celgene Amsters have announced their superb success at raising £7601 for MDS UK – thank you so much to all involved in the team – well done everyone! Here is what their page says:
We did it! After a gruelling run, all runners completed the Half and full Marathon in Amsterdam. Congratulations to Emma, David, and Alex for running your first Marathon! Congratulations to Kevin for your PB and to Nadjet for your first Half! Conditions were a little windy but generally good for running. Big THANKS to all of you who have already supported our charities. If you haven’t already donated, now is your chance.
Celgene Amsters raised funds for both MDS UK and Myeloma UK – and Celgene matched the sum raised again – thank you so much! Your continued help and support are extremely valuable – as well as the dedication of all the staff at Celgene.
Truly grateful for your assistance.
Theatre and “Calendar Girls”
This amazing theatre group from Tarrystone donated £2,172.86 from the proceeds of their production of “Calendar Girls”. Take a look at their website – and photos of the play: http://www.tarrystoneplayers.co.uk/ We thank Jonathan Yates, Chairman and the cast and crew of The Tarrystone Players. In addition, The Rotary Club of Cookham Bridge, who run the bar for the Tarrystone Players – also donated the bar proceeds to MDS UK – amounting to £566.84. Thank you so much to all. Well done on you brilliant production – we wish as much success for the next one!
Padraic Lynch, together with his daughter Karen and the Meath Association had been a wonderfully active and generous supporter of MDS UK. Sadly Padraic passed away very recently and we have received £505 in donations in his memory from William Farrelly, Joanne Gardener - friends and colleagues from Colt Technology Services. Many thanks for your generosity and support.
His daughter Karen – with the Meath association – is again setting up another dinner and dance event on the 7th December – with proceeds to come to MDS UK. Many re-newed thanks to Karen, Meath Association and everyone attending.
Michelle Redford ran the Great North Run last year – in memory of her Dad Tony Azurdia. She raised and amazing £2,607 via the Virgin Money Giving page – as well as some off-line donations.
See her mention and photo in our 3rd Newsletter 3 as well. Thank you so much Michelle.
Helaine Carey – Memorial donations
MDS UK received a very generous £1000 which were raised following the funeral of Helaine Carey in October 2012. This was organised by Helaine’s daughter in law Kim. We are very grateful for your support. Many thanks to all donors who have contributed to this donation.
Kim told us she had a baby end of February – we congratulate her and her husband on the new arrival.
Kim’s husband and friends are also planning a charity football game on 1st June. They hope to raise funds & awareness of MDS. Friend John Pearcy is organising the event.
We very much thank Kim, her husband, John and all the football team for their support. More info and photos of the game on our Events page:
In Memory of Keith ‘Wally’ Webb
We are very grateful to all those who donated to MDS UK in memory of Keith ‘Wally’ Webb. Friends and family of Wally have donated an extremely generous amount totalling £859.50.
Wally was a very prominent, active and well loved figure in his local village of Walberswick, on the Suffolk coast, where he worked running his own building business.
In a piece in the village newsletter celebrating his life, Wally is described as having had ‘an energetic presence and particular brand of humour’.
His memorial service on August 19th 2012 was attended by over 500 people.
We are very grateful for this very kind donation.
Guess the Weight of the Marrow Competition 2012
MDS UK committee member Chris Dugmore came up with an ingenious way to raise money at lunchtime for MDS UK, following the theme of marrows. Supplying one of the organic marrows she and her husband Stephen had lovingly grown in their allotment, Chris raised an amazing £75.85 by asking for donations from forum attendees to Guess the Weight of The Marrow.
The lucky winner of the marrow was Fiona Pirilla (also an MDS UK Committee Member!) who came closest to guessing the correct weight of 4 lbs 5 1/4 oz (1,965 g) with a guess of 4.5 lbs. Click here for full story.
Matt Snell Skydive
Matt Snell, son of Jayne Snell who had a Bone Marrow Transplant earlier this year, bravely completed a skydive to raise money for the Anthony Nolan Trust, Leukaemia and Lymphoma Research and MDS UK. Matt raised an amazing £2921, split between the charities, with a very generous £500 going towards MDS UK. Thank you very much for your amazing acheivement and donation!
See left for a picture of Matt and his mum Jayne.
Waitrose Community Matters Bayswater
A big thank you to Bayswater Waitrose who featured MDS UK as part of their Community Matters project and have donated a cheque for £384.00. Pictured left are MDS UK Committee member, Joanne Anderson, with Bayswater Waitrose staff member, Golam Gaus. A big thank you to Joanne who organised our participation in the project. We encourage MDS UK supporters to ask their local Waitrose to feature us. Click here for more information.
More Waitrose branches have now also joined the scheme – on request from their customers diagnosed with MDS. Chris Dugmore asked her branch in Chelmsford and Sharon Berger’s family signed up the Brent Cross Waitrose – more news to follow.
Why not ask your own branch?
Wimbledon via Oxford donation
We received a generous donation of £350 from Prof Paresh Vyas – prompted by the very kind gift of some Wimbledon tickets by MDS patient Nicola Maskens to Prof Vyas. We thank them both and wish Nicola all the best as she is preparing for her transplant.
MDS UK and the Aplastic Anaemia Trust had the pleasure of being invited by the Rotary Club of Easthampstead in May 2012 to give a talk on MDS and AA. Nana Benson Quarm – AA Clinical Nurse Specialist CNS at King’s College Hospital gave a detailed talk on both conditions, whilst Anna Martin (AAT Chief Executive) and Sophie Wintrich gave an overview of their respective charities. Each charity received a very kind donation of £125.00. Our host there – Kevin Izod (or Peter as he is better known) is a patient himself and an active member of the Rotary Club. The members there hold regular talks, events, social gatherings and more – all for the benefit of various local charities. To get a better idea of the extent of their helpful work, visit their website. The work they tackle is very impressive. It was a most pleasant evening in great company – we thank all involved.
In Memory of Peter Maksymowych
Peter Maksymowych and his son Stephen got in touch with us in September 2009 – after Peter’s diagnosis – and came to see us in our office at the Rayne Institute at the time. They very kindly donated funds several times throughout Peter’s illness. Peter sadly passed away in December 2011. His sons Walter and Stephen sent us some information about their amazing Dad, which we’d like to share with everyone.
Ruby Wedding Anniversary
A huge thank you and congratulations to Peter and Sandra Cornwell who donated an amazing £350, raised at their Ruby Wedding Anniversary. The donations were made at the request of Mr and Mrs Cornwell as gifts to celebrate their 40 years of marriage. Thank you so much for you support!
Watch Night Service at Dornoch Cathedral
A cheque for £300 has kindly been donated by those at the Dornoch Cathedral in the Scottish Highlands, pictured left. We received the very generous donation from Hugh Anderson, the cathedral’s treasurer, following a collection at their Watch Night Service. Thank you very much for your support.
60th Birthday Gifts
We are very touched to receive an amazing cheque for £325, sent by Annie Clark who raised money by asking for donations rather than gifts on the occasion of her 60th birthday. Thank you Annie, for your generosity and your support.
Greetings Cards Stall at Hospital
Thank you to Bethan Maguire and Janet Whitter for their kind donation of £40, made from sales of their lovely home-made greetings cards and bookmarks (pictured left). The stall was set up in their local hospital. We especially like the MDS UK Patient Support Group bookmark!
Rotary Club of Southborough and Pembury Collection
Thank you to the Rotary Club of Southborough and Pembury who donated a brilliant £253.68, the proceeds of a collection by the Club at the annual Southborough School of Dance Charity Concert held at the Victoria Hall, Southborough. We are very grateful to be supported by the Rotary Club.
Bournemouth Male Voice Choir - In Memory of John Medhurst
A cheque for £25.00 has been sent by the Bournemouth Male Voice Choir (pictured left). The donation was kindly given in memory of the late Chorister, John Medhurst by a fellow Chorister James Bowman DFC.
We are very grateful to receive the cheque in memory of John. Thank you for your support.
Bric-a-Brac Sale at Village Festival
Southend & District Ladies Amateur Darts League
We are delighted to be supported by the Southend and District Ladies Amateur Darts League with a cheque for £100. Two teams from the league of 13 teams have chosen MDS UK as their charity to support. Thank you so much for your generosity.
Adult Community Learning and Colleagues at Essex County Council Staff
Thank you very much to the employees of the Adult Community Learning and Colleagues at Essex County Council who donated a brilliant £38.50 to support MDS UK. The money was donated by staff instead of sending individual Christmas cards. The money was donated in support of one of the staff at the council who has been diagnosed with MDS. Thank you for your donation!
Turkish Themed Charity Night
A big thank you to Bethan Maguire who raised a brilliant £352.65 by hosting a charity evening with a Turkish theme.
The evening was held in memory of Bethan’s late mother, Shirley Maguire. We are very grateful for the kind donation.