MDS UK would not exist without the very early and generous assistance of several main sponsors – Celgene, Novartis Oncology and Baker Tilly. These sponsors have maintained their kind support since 2009 and we are extremely grateful for their help.
We would like to encourage many more industry partners and private companies to engage with us and help us raise funds and awareness of MDS.
We also encourage all our members to talk to their employers.
Many companies have specific donation schemes, Give as you Earn or Corporate Social Responsability Schemes who would be willing to donate to small charities.
Employees can nominate their chosen charity – which not only helps us financially – but raises awareness of MDS amongst the entire company.
This extra awareness is particularly important for rarer conditions like MDS which are totally unknown amongst the general population.
It is much easier to raise funds for well known diseases – so we need all the help we can get. Some companies mention their chosen charity in their corporate newsletter – another fabulous awareness advantage!
We will be listing these companies on this Corporate Fundraising page and hope that many more will join this generous practices.
Here is also a brief description of what CSR usually entails:
Corporate social responsibility is a form of corporate self-regulation integrated into a business model. CSR policy functions as a built-in, self-regulating mechanism whereby business monitors and ensures its active compliance with the spirit of the law, ethical standards, and international norms. The goal of CSR is to embrace responsibility for the company’s actions and encourage a positive impact through its activities on the environment, consumers, employees, communities, stakeholders and all other members of the public sphere. Furthermore, CSR-focused businesses would proactively promote the public interest (PI) by encouraging community growth and development, and voluntarily eliminating practices that harm the public sphere, regardless of legality. CSR is the deliberate inclusion of PI into corporate decision-making, that is the core business of the company or firm, and the honouring of a triple bottom line: people, planet, profit.
MDS UK has received donations from :
Founded in 1937, Mishcon de Reya is a law firm with offices in London and New York offering both individuals and companies a range of legal services encompassing: corporate; employment; dispute resolution; family; private client; and real estate.
Georgina Yik told us: “My role as Corporate Social Responsibility Executive is to oversee all the CSR activities for Mishcon de Reya, including charitable giving and the environment. We have a long history of charitable giving but last year we redefined and strengthened our CSR programme into one vehicle, Mishcommunity.
Mishcommunity represents our charitable giving commitment for the next two years, mainly that we will support a local charity within our business community, an overseas charity and also support the fundraising efforts of our employees and the charities in which they have a personal connection. Each month we have a dedicated Discretionary Fund whereby members of staff can nominate a charity for consideration. The allocation of the fund is decided by a roving committee of staff, which changes each month. This committee decides how to allocate the fund, with 35 charities receiving our support in 2010.
Gloria Brady, a Senior Legal Cashier in our Accounts Department, nominated MDS for consideration in our January fund after her Aunt was diagnosed with MDS in August last year. This is typical of the type of charities which are nominated each month, where someone has personal experience of the invaluable assistance charities such as MDS UK offer.”
John Lewis Partnership has kindly contributed towards the costs of our annual London Patient Forum – via their local Victoria office.
Their Community Liaison Co-ordinator in Victoria explained their fantastic policy about assisting local small charities:
John Lewis is a co-owned business and as such has made a decision to support local charities in the areas where our Partners live, work and trade; each branch of John Lewis has a Community Liaison Co-ordinator who will look after a specific postcode area. Our budgets are limited, but we focus on supporting local charities that are making a difference in our community with particular interests in youth, health, education, homelessness and worklessness and the elderly. The Community Liaison Group Victoria supports groups or projects that are pan-London as well as those that are based in South Westminster.
Please do contact your local John Lewis Community Liaison co-ordinator and ask if they would donate some funds towards a patient meeting in your area. MDS UK would be happy to help you set up a local group.
As part of the Community Matters project, each month every Waitrose branch donates £1,000 between three local good causes that their customers choose. At the checkout, shoppers receive a token which they put in the box of the good cause they’d most like to support. The more tokens a cause gets, the bigger the donation they receive.
We encourage MDS UK supporters to ask their local Waitrose to feature us. All you need to do is ask at your local branch to support MDS UK as a good cause to support local people who may have been affected by MDS.
Click here for a brief document that can be used to help explain MDS and what MDS UK do.
All you need to do is approach your local Waitrose branch and submit a request to their Community Matters scheme. They will set up a green coin box – with the brief MDS UK description above – and then shoppers just vote with their coins to say who (out of 3 charities displayed) which one gets the Community Matters funds the most.
Could not be easier – and we will aim to spend the funds for local groups!
Several Waitrose branches are now offering the token scheme for MDS UK: Bayswater, Leigh-on-Sea, Brent Cross.
Thank you to all of them – this is an amazing way to raise awareness of MDS – as well as much needed funds.
Pauline Hammond – Leigh-on-Sea resident and MDS patient accepted the donation on behalf of MDS UK. We thank all staff at Waitrose Leigh-on-Sea branch – especially Karen Green, who is in charge of the Community Matters scheme there.
Waitrose Bayswater – donated some funds for the second year running – via the Community Matters scheme. We thank all the staff – and especially Imdirani – in charge of the scheme in Bayswater. Staff member Richard Pearce is seen here handing over the cheque to MDS UK Committee Member Joanne Anderson.
Brent Cross Waitrose collected a very generous £500 for MDS UK in July 2013 – under the watchful eye of Sharon Berger’s grand-son and his dad Jonni.
Thank you to all shoppers and staff there – and for the Berger family for instigating the request in their local Waitrose!
We also thank all customers who have voted with their green coins for our charity.
This is wonderful support from Community Matters and all Waitrose shoppers.
We received a very kind donation of £306.50 from the company Etihad Airways, who raised these funds after one of their employees, Gavin Hepburn was diagnosed with MDS. Gavin has been employed at Etihad Airways since 2004. The company raised the money through an auction, and kindly donated it in recognition of his diagnosis of Hypoplastic MDS with Monosomy 7 in October 2012.
Gavin, who is 36 years old – with 3 children, will now undergo a bone marrow transplant in May 2013, at King’s College Hospital, London.
We thank Etihad Airways for their support and generosity and wish Gavin all the best with the transplant.
December 2013 – Update on Gavin and Etihad Airways
Throughout Gavin Hepburn’s treatment, his employers and staff members have very generously continued to raise funds in his name for MDS UK – and collected a fantastic further £800.
We are so grateful to Etihad Airways and its dedicated staff for this second donation.
It is truly heart-warming to see such supportive and kind gestures from an employer – and its staff.
We are also very happy to report that Gavin is recovering well from his transplant. We wish him well on his road to a full recovery from MDS.
A donation was gratefully received from the company Amgen – via their Volunteering and Charity Engagement scheme.
We are very grateful for the donation and the employee instigating this donation, Ms Gabriela Machackova.
Or – Give as you Shop! This is a very easy way to help us – without having to donate anything yourself – simply by completing your online purchases via this system.
If you use the internet to buy goods, hotels, travel or services online, please consider using this scheme, which allows you to pick your favourite cause and allows you to raise funds at no cost to you. MDS UK is registered there and all you need to do is to register and download the application – then shop online as you would normally.
Please forward to friends and family. Thank you for your on-going support.