The discussion forum is open to MDS patients, family, carers, health care professionals and anyone affected by MDS.

The messages can be read by anyone – as a guest user CLICK HERE

But if you wish to respond or write a message – you will need to register.

Please note: This Message Forum is anonymous and only requires a valid email address.
For a full MDS UK Membership, you need to contact the main office via telephone or email – and request a patient information pack:
Tel 0207 733 7558    or


HOW TO REGISTER with this online Message Forum:

Step 1: CLICK HERE for a demonstration guide.

Step 2: CLICK HERE to get to access the main message page – then click on the REGISTER button (top left corner).


Dear Forum users :

You may freely browse the various discussion topics available within the forum as a GUEST. To join and contribute to any of the discussions, you will need to supply a valid email address and choose a user name and password to become a MEMBER. Your email address is used here ONLY for the discussion forum, your email address in not visible to other forum members and is not made available for any other use.

Once you have joined the forum, you may freely contribute to the various discussions, and may also communicate directly with other forum members within the forum using the forum messaging system (email addresses are not divulged).

We would really welcome your contributions…

Users that had registered with the old version discussion board will need to have their password re-set to access this upgraded discussion board.
If you experience any problems with registration or messages on this discussion board, please contact our main office or our webmaster: