My father's blood counts have also been dropping a lot, and not maintaining for long post transfusion. One of the doctors that he has seen has suggested that his spleen might be a root of this, as it is enlarged and may be filtering out healthy as well as spent cells.
As Chris says the next step will need to be to see what your consultants say.
I hope that when you get your diagnosis your doctors are able to prescribe a course of treatment that allieviates your symptoms.
Thank you - I didnt think I was the only one! I had a kidney infection at the doctor was able to tell I had an enlarged spleen by pushing on it. I dont see the consultant until October, I am hoping for news and idea of treatment then... Thanks