Select an event on the left to read more about it.
Our patient and family forum events are open to all MDS patients and their guests and are free of charge. Patients and their families will have the opportunity to participate in informal discussions regarding their quality-of-life issues living with MDS. New therapies and patient treatment options are discussed, presented by our guest speakers – MDS specialist physicians and nurses. Attendees are also given the opportunity to participate in a question and answer segment with the guest speakers.
We actively encourage all patients and family members to attend these information and support events.
Several forum events in various cities are planned for this year and will be announced on the website as soon as they are scheduled.
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MDS UK local groups
We started assisting the creation of local and regional groups – to enable patients to regularly meet face to face and offer each other support.
These groups do not replace the advice and assistance we give from our London office – nor the forum event days we organise every year.
Oxford and Thames Valley Regional Group
Location: Churchill Hospital – Oxford Cancer and Haematology Centre, Level 2, Meeting room 1 – Churchill Drive – Headington – Oxford OX3 7LJ
This group meets every 4 months for 2-3 hours in the afternoon – led by the Haematology Clinical Research Nurse – Lianne Jones.
We are looking for a local patient or family member to assist Lianne to run this group.
For more information and dates of meetings, please call: Lianne Jones – Churchill Hospital on Tel: 01865 572023 – or check our Calendar of events
Exeter Area Patient Group
Location: Royal Devon & Exeter Hospital - Reception of Yarty Ward, Barrack Road – Exeter EX2 5DW
This group meets every 4 months for 2-3 hours in the afternoon – led by MDS patient John Watson and Haematology Support Specialist Tania Davidson.
In 2012 – Plymouth and hopefully Taunton will join this group and host some meetings.
For more information and dates of meetings: Tania – RD&E Hospital on Tel: 01392 402879 – or check our Calendar of Events
Essex Patient Group
Patient Chris Dugmore has started a small informal group. She would like to hear from more Essex based patients and relatives please – to meet more frequently.
Please contact us at the main office if you wish to join, meet or help contribute to this group.
Anglia Regional Group – Cambridge based
Nine volunteers run this regional group – all of them MDS patients and relatives. Activities will alternate between presentations and general get together opportunities. The group meets at the Scotsdale Center in Cambridge. Meeting dates will be advertised on our calendar of events.
Further info: 0207 733 7558
London and King’s College Hospital Group KCH
New group – led by the Haematology Clinical Nurse Specialist at KCH.
2nd meeting 23 April 2012 – 3pm to 6pm – Cicely Saunders Institute – King’s College Hospital. For further information – 0207 733 7558 0 or check calendar of events.
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Other emerging local groups
Yorkshire/Leeds area – several patients interested in meeting regularly
Sussex – several patients interested in forming a small informal group – please register your interest with the office
Cardiff/Bristol/Weston-Super-Mare area– a forum will be held in 2012 – but we need more patient interest to establish a regular local group.
Midlands – strong interest from many patients – we will hold a forum in the area in 2012 – please register your interest in joining this group.
Leeds – looking for 1 or 2 patient volunteers to assist the local MDS nurse
Dublin/Ireland – 1 forum was held in 2011 – we will set another one up in 2012 – but need to hear from more patients based in Ireland please.
If you would like to start another regional group – please contact us.