MDS UK Patient Support Group

Our contact details

Telephone: 020 7733 7558

Email: mds-uk@mds-foundation.org or by filling out  www.mdspatientsupport.org.uk/support-us/support-and-contact-form/

Our aims

• To provide a networking service through which those newly diagnosed with MDS may share their experience with fellow sufferers.
• To provide a contact help and advice telephone line 5 days/week
• To organise several national patient information meetings with specialist speakers
• To help patients create small regional support group meetings, to meet informally – or organise activities or small presentations.
• To distribute information and raise awareness of MDS to patients, carers and health care professionals across the UK.
• To provide access to a list of UK consultants, specialising in MDS.
• To develop and maintain a website, providing information on MDS. Also direction to other relevant sites.

Joining the MDS UK Patient Support Group

Membership of the Group is free and open to all, so why not join us? To join please click here for a form

Donations

Although we are a voluntary charity, we do need funds to enable us to expand and improve our service.

If you are willing to assist with donations, please use the Virgin Money Giving site: click here for details.

MDS Specialists at Centres of Excellence in UK/Ireland

King’s College Hospital
University of London
London, United Kingdom
Ghulam J. Mufti, MD

Leeds General Infirmary
The Leeds Teaching Hospitals
Leeds, United Kingdom
David T. Bowen, MD

MRC Laboratory of Molecular Biology
Addenbrookes NHS Trust
Cambridge, United Kingdom
Alan J. Warren, PhD, FRCP, FRCPath

Queen Elizabeth Hospital
University Hospital Birmingham NHS Trust
Birmingham, United Kingdom
Charles Craddock, MD

Radcliffe Hospitals and University of Oxford
Oxford, United Kingdom
Paresh Vyas, MD

Royal Bournemouth Hospital
Bournemouth, United Kingdom
Sally Killick, MD

Aberdeen Royal Infirmary
Aberdeen University
School of Medicine
Foresterhill, Aberdeen, Scotland
Dominic Culligan, MD

University Hospital of Wales
Cardiff, Wales
Jonathan Kell, MD

Ireland
Adelaide and Meath Hospital
Dublin, Ireland
Helen Enright, MD

If you would like more information and advice about MDS, contact us at:

Postal Address:
MDS UK Patient Support Group (Charity No. 1122780)
The Rayne Institute
King’s College Hospital
123 Coldharbour Lane
London SE5 9NU, UK

Telephone: 020 7733 7558

Email: mds-uk@mds-foundation.org or by filling out click here http://www.mdspatientsupport.org.uk/support-us/support-us/

Website Enquiries

Please email mds-uk@mds-foundation.org for any website enquiries.

The Committee

David Hall Chairman 2008-2011  (MDS Patient)	Sharon Berger Treasurer (MDS Patient)	Fiona Murray Committee Secretary (MDS Patient)
Sophie Wintrich Patient Liaison	Janet Hayden Clinical Nurse Specialist	Phyllis Paterson Clinical Nurse Specialist
Prof Rodney Taylor Chairman (MDS Patient)	Dr Dominic Culligan Scientific Newsletter Editor	Jan Buchanan Fundraising team
Joanne Anderson Fundraising team (MDS Patient)	open-ecommerce.org Web Designers (work on new website in progress)