MDS UK

News

  • Scientists discover new way to make human platelets


    Another fantastic discovery suggest that human platelets could be produced artifically through the use of stem cell technology. There is a number of benefits associated with the laboratory generated platelets of relevance to those who rely on frequent platelets transfusions. For more details read the full article on Bio-Medicine website (click here to access), also […]

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  • Pharma companies to share experimental compounds with UK researchers


    A ground-breaking collaboration project between Medical Research Council in UK and seven leading pharma companies has been announced, as drugmakers agreed to share data on their experimental pharmaceutical compounds. British academics will now be able to use pharma’s existing findings to further test these compounds and explore if they could be improved or used for […]

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  • Newsletter 5 is out!


    NEWSLETTER 5 – June 2014 We have just finalised our 5th edition of our MDS UK Newsletter. It is a bumper issue – with 16 pages – as we had a lot of information and news to cover. In the past, we had editions of 8 and 12 pages. We would appreciate your comments and […]

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  • 19th Congress of the European Hematology Association – 12th-15th June 2014


    19th Congress of the European Haematology Association (EHA) has taken place this year between 12th and 15th June in Milan, Italy. This event is set up for physicians and representatives of patient support groups to  promote excellence in patient care, research and education in haematology. As part of the Worldwide Alliance of national MDS Patient support […]

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  • NICE Lenalidomide appraisal


    NICE – Lenalidomide Appraisal – ACD – June 2014 NICE has issued their latest decision regarding the use of lenalidomide in del 5q MDS patients. Unfortunately, this is still negative, but it is not yet NICE’s final decision. Despite the introduction of a Patient Access Scheme, as well as further data and evidence of use […]

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  • Research Project in Scotland – artificial blood an alternative to blood transfusions


    A new and very promising research project is being conducted at the University of Edinburgh with an aim to generate red blood cells in laboratory, using stem cell technology. Ultimately it is hoped that these red blood cells could be given to patients instead of using human blood donors. Using lab-generated blood, which is also infection-free, […]

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  • Scottish Medicines Consortium – lenalidomide approval


    SMC approves lenalidomide for MDS del 5q

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  • Lenalidomide – NICE meeting – 1st April 2014 – Manchester


    Opportunity to attend the next NICE meeting for lenalidomide in Manchester – please join us!

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  • Greater Manchester opportunity for involvement


    Opportunity for patients and relatives to get involved in Primary Care issues in the Greater Manchester area.

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  • New Regional Patient Groups – in association with Leukaemia Care


    New optional Regional Group Meetings, in association with our colleagues from Leukaemia Care Starting this year, MDS UK and Leukaemia Care decided to offer their respective patients the option to attend each other’s patient group meetings – as both organisations offer great help to MDS patients. For those who don’t know them: “Leukaemia CARE is […]

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