MDS UK

News

  • MDS UK running vests are in!


    MDS UK running vests have arrived! To celebrate our record number of brave marathon and other sporty events, we decided to have these running vests made – for MDS to stand out in the crowds. This year we are so lucky to have 7 marathon runners – in Brighton and London: Jodie Cooper, Caitlin Limmer […]

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  • Russell’s stem cell transplant experience – new video


    New video clip – Russell Cook’s stem cell transplant experience 05/03/15 We have uploaded a new video clip of our friend and new MDS UK trustee Russell Cook. He tells us in detail about his experience of his three stem cell transplants – two from an unrelated donor – which failed, followed by stem cells […]

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  • Aplastic Anaemia Awareness Day – 4th March 2015


    Aplastic anaemia (AA) is a rare but serious acquired bone marrow failure disorder of considerable clinical similarity to the hypoplastic type of MDS.  In same cases AA  may also progress to MDS. Given the link between the two conditions we often collaborate with the the support group for AA patients – Aplastic Anaemia Trust. Together […]

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  • Daisy Turner – an inspirational young MDS survivor


    Daisy Turner and her MDS experience   We are pleased to share the story of a very brave and inspirational young MDS patient – Daisy Turner. Daisy was diagnosed with MDS as a teenager and represents one of the uncommonly occurring cases of MDS in young people. However, her young age isn’t the only thing […]

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  • Hepburn Family raising awareness for MDS


    Hepburn Family raising awareness for MDS 11/02/15 We reported previously on Gavin Hepburn, who had a stem cell transplant a year ago – but is unfortunately needing a bit more treatment to adjust his donor cells. The family has been terrific at rallying around to raise awareness of MDS generally – as well as raise […]

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  • World Cancer Day – Wednesday 4th February 2015


      World Cancer Day is a truly global event to unite the world’s population in the fight against cancer. Its aim is to raise awareness that there is much that can be done at an individual, community and governmental level, to harness and mobilise the solutions and catalyse positive change. World Cancer Day is an initiative […]

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  • Cancer Drug Fund – update


    Cancer Drug Fund – 20/01/15 The CDF team was recently forced to remove 20 drugs from the list of drugs they fund – in order to balance the budget allocated to them by the Department of Health. The CDF was never supposed to become a permanent solution to the problem of funding cancer drugs. Instead, […]

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  • LLR grant for Familial MDS/AML


    Leukaemia and Lymphoma Grant for research into Familial MDS MDS is not considered a hereditary disease – but there is a very small percentage of cases where 2 or 3 members of the same family are affected. This is why Leukaemia & Lymphoma Research have granted the Barts Cancer Institute £1.4 Mio pounds for research […]

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  • TED talk on MDS/AML research – by expert Dr A Raza


    TED talk on MDS/AML research by expert Dr Azra Raza. Published on 15 Jan 2015 Cancer research relies heavily on testing drugs in mice — yet it’s clear that for effective treatment, we need to be testing in humans. In an informative talk, oncologist Azra Raza walks us through the challenges of personalized cancer research […]

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  • Haematology conference updates – Part 1


    Further updates on clinical and research news from the two main haematology conferences in Europe and the USA. Part 1 – Europe – from the EHA conference Part 2 – International – from the ASH conference (report in preparation) Report provided by Dr Wendy Ingram Consultant Haematologist, University Hospital of Wales, Cardiff Report from the […]

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