MDS UK

News

  • Daisy Turner – an inspirational young MDS survivor


    Daisy Turner and her MDS experience   We are pleased to share the story of a very brave and inspirational young MDS patient – Daisy Turner. Daisy was diagnosed with MDS as a teenager and represents one of the uncommonly occurring cases of MDS in young people. However, her young age isn’t the only thing […]

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  • Hepburn Family raising awareness for MDS


    Hepburn Family raising awareness for MDS 11/02/15 We reported previously on Gavin Hepburn, who had a stem cell transplant a year ago – but is unfortunately needing a bit more treatment to adjust his donor cells. The family has been terrific at rallying around to raise awareness of MDS generally – as well as raise […]

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  • World Cancer Day – Wednesday 4th February 2015


      World Cancer Day is a truly global event to unite the world’s population in the fight against cancer. Its aim is to raise awareness that there is much that can be done at an individual, community and governmental level, to harness and mobilise the solutions and catalyse positive change. World Cancer Day is an initiative […]

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  • Cancer Drug Fund – update


    Cancer Drug Fund – 20/01/15 The CDF team was recently forced to remove 20 drugs from the list of drugs they fund – in order to balance the budget allocated to them by the Department of Health. The CDF was never supposed to become a permanent solution to the problem of funding cancer drugs. Instead, […]

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  • LLR grant for Familial MDS/AML


    Leukaemia and Lymphoma Grant for research into Familial MDS MDS is not considered a hereditary disease – but there is a very small percentage of cases where 2 or 3 members of the same family are affected. This is why Leukaemia & Lymphoma Research have granted the Barts Cancer Institute £1.4 Mio pounds for research […]

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  • TED talk on MDS/AML research – by expert Dr A Raza


    TED talk on MDS/AML research by expert Dr Azra Raza. Published on 15 Jan 2015 Cancer research relies heavily on testing drugs in mice — yet it’s clear that for effective treatment, we need to be testing in humans. In an informative talk, oncologist Azra Raza walks us through the challenges of personalized cancer research […]

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  • Haematology conference updates – Part 1


    Further updates on clinical and research news from the two main haematology conferences in Europe and the USA. Part 1 – Europe – from the EHA conference Part 2 – International – from the ASH conference (report in preparation) Report provided by Dr Wendy Ingram Consultant Haematologist, University Hospital of Wales, Cardiff Report from the […]

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  • 2015 opportunities to support MDS UK


    ULTRA Challenge series in 2015 Walk it, Jog it or Run it – choose your distance!  It’s Your Challenge – Your Way! If you’re looking for a challenge in 2015 you might be tempted to join any of the following 2015 events and help raise funds for our charity. Several people have already signed up – […]

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  • Call to Action report


    MDS – Call to Action report MDS World Awareness Day is taking place on Saturday 25th October, where patients and patient groups come together to raise awareness of MDS and help to improve the standard of treatment for these patients. To coincide with this important date and together with blood cancer charity Leukaemia CARE, MDS […]

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  • MDS World Awareness Day – 25th October


                                        MDS World Awareness Day – Preparations for 2015 We are preparing for MDS Day 2015.  Do contact us if you’d like to participate in any events around the country to mark this international awareness day for Myelodysplastic Syndromes. See below for MDS day 2014 – in the UK and in other countries. MDS World […]

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