MDS UK

News

  • MDS patients and carers attend parliamentary reception for Cancer52


    5th May 2016 On 20th April a group of seven MDS (Myelodysplastic Syndromes, a rare blood cancer) patients and carers went to Westminster and attended a parliamentary reception organised by Cancer52, a coalition of more than 80 charities representing rare and less common cancers. The reception was hosted and addressed by Chairman of the All-Party […]

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  • Nurses’ Day – 12 May 2016 – Kes Grant’s Thank You


    17th May 2016 Nurses Day Nurses’ Day takes place on 12th of May each year, on the anniversary of Florence Nightingale’s birth. It’s a chance to celebrate the remarkable difference nursing staff around the world make every day. It’s also a time for patients to thank nursing staff for their dedication and care. This year […]

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  • New MDS Patient Handbook


    17th May 2016 Being diagnosed with myelodysplastic syndrome (MDS) can be a shock, particularly when you may never have heard of it. MDS UK has now produced a brand new MDS patient booklet, created in cooperation with our colleagues from Leukaemia Care and Bloodwise. It has been written to help you understand more about MDS. […]

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  • Apply to review Cancer Research UK research centres


    22/04/2016 Cancer Research UK are recruiting a patient panel to review their research centres and you can apply to be a member. Cancer Research UK funds 18 experimental cancer medicine centres and gives support to 15 more research centres across the UK. These centres are essential to beating cancer sooner. All of these centres will […]

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  • Understanding Mutations to Treat MDS


    The most dramatic development in MDS research over the past few years has been the identification of the gene mutations that cause MDS. These mutations are not inherited, but are acquired in blood stem cells during the lifespan of a person. Benjamin Ebert is researching these mutations. A major focus of his research is to […]

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  • Take Part In This Survey And Help To Create Better Tools For Patients


    Thanks to the latest improvements in cancer treatment many more cancer patients are now able to live with their condition. As a chronic illness, cancer requires long-term watch, maintenance and treatment and patients and their families need to manage their own care. The iManageCancer project is creating intelligent, fun new ways to allow patients to […]

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  • Evie McClean Starts an Exciting New YouTube Channel


    Evie does You Tube – and she is a real pro!!! Go Evie! Have a look at her first video clip. Evie is a member of MDS UK Patients Support. Here is Evie’s video clip with 10 facts about her. We hope she will do a great clip for MDS UK to talk about MDS and […]

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  • Urgent – CDF solution for Blood Cancer drugs


    The Cancer Drug Fund (CDF) de-listing further drugs 04/11/15 Many blood cancer patients are about to face more severe issues of access to treatment, following the announcement that the CDF is de-listing further drugs in order to balance its budget. Twelve of these are blood cancer drugs. None of the cuts affect MDS patients, but […]

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  • MDS World Awareness Day – 25th of October 2015


    2015 MDS World Awareness Day: Video Stories 25/10/2015 Some of our true champions for MDS awareness have shared their stories with us. Watch their video clips and share them in support of MDS World Awareness Day 2015! Emma Paine: What happens when you need a second transplant? Emma is an MDS patient.  She had a […]

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  • Question Prompt List to help meet the information needs of MDS patients


    What do UK MDS patients say about the information they receive at diagnosis? According to UK MDS Survey: Over half of respondents agree that their needs for verbal information on MDS have been met sufficiently. For the remaining 46% the provision of verbal information could be improved on. Usefulness ratings of verbal information provided vary […]

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