MDS Worldwide and Awareness Campaign

Life Beyond Limits: European Launch


     Tuesday 25th September 2012 –  Friday 5th October 2012

              MDS Photography Exhibition
                    King’s College Hospital

Ruskin Wing Entrance
King’s College Hospital
Denmark Hill
London SE5 9RS

The Exhibition 

‘Facing MDS: When Every Moment Counts’

This is a free exhibition open to all: patients, families and the general public. We encourage everyone to view this exhibition, debuting in Europe at King’s. Previously exhibited in the USA last December during the world haematology congress ASH 2011.  

Showcasing photographs by the award-winning photographer Ed Kashi, the ‘Life Beyond Limits’ exhibition offers an inspirational glimpse into the lives of six individuals across the world who are living with myelodysplastic syndromes (MDS). Despite the severity of their condition, the photographs illustrate how these individuals are not defined by their condition as they continue to embrace a ‘Life Beyond Limits’.

The photograph collection is part of a wider global health initiative aiming to ensure cancer patients have the best possible quality of life, regardless of their age. Life Beyond Limits brings together advocacy groups and independent groups of MDS experts to raise awareness of MDS, elderly patient care and inspire the MDS community to ensure MDS patients are getting the best care possible.

The photography exhibition will run from the 25th September to the 5th October 2012 in the Ruskin Wing at King’s College Hospital.

Click here for the main Life Beyond Limits website and the Campaign.  The website contains contributions and stories from MDS patients all over the world. This website is not UK specific and is destined to an international audience.



This event is being made possible thanks to the generous support of Celgene.

We also thank King’s College Hospital for the very kind use of the space.

Further developments of the Life Beyond Limits campaign

The coalition of patient groups leading the Life Beyond Limits campaign is planning many more events and programmes in the very near future, as outlined below.

Based on the online experience of the Life Beyond Limits advisory board, the Life Beyond Limits campaign will offer training opportunities via eCancerCampus, an e-learning platform, helping patients, relatives and professionals to find recent and accurate information regarding any sub-type and stage of the disease, as well as covering different aspects of living with MDS, from a patient perspective.

This will enable patients to be involved in an online community – helping them to play a more active role in dealing with their condition and their treatment.

Also based on the success over the last 2 years, Life Beyond Limits webinars will be held to increase communication between healthcare professionals and patients, without any barrier of time or location – all of it available to everyone – free of charge via just an Internet connection.

In the very near future, further Life Beyond Limits activities will take place world-wide at the most important onco-haematological events, and as part of many patient group initiatives. These patient group led activities will cover aspects of disease explanation, caregiver support, ageism in oncology and Research and Development from a patient’s perspective.

A short ‘Life Beyond Limits’ movie will feature at the heart of the wider campaign, raising awareness of the disease and highlighting the objectives of this important initiative. By communicating on TV, radio, online and at high street events, patient groups will be able to achieve their goal of getting society to think differently about older patients.

We invite you to follow these exciting developments on our website.

MDS World Awareness Day

MDS UK and many MDS patient groups all over the world decided to mark 25th October as a very important new date – MDS World Awareness Day.

MDS Awareness Day poster (261x370)

We would like to encourage all patients and relatives to mark the day – in any way they wish – publicizing it on their Facebook pages, making presentations or posters to display at school, university, work places, pubs, local shops, gyms, GP offices – or any other location accessible by the public! We can help with materials, leaflets, newsletters, photos, badges, T-shirts. Just get in touch with us – send us photos of the day – write to us about how your marked the day – what people said to you – what questions you were asked.