MDS UK has members (patients and their families) across the UK and Ireland. We are hoping to create local groups so that all members can access regular support meetings in their local areas. The map below shows the approximate location of all members, and the supporting clinical contacts currently in touch with MDS UK. The blue markers show where we would like to set up Local Groups.
Click the links on the left to see individual areas and the locations of people we are aiming to reach. Use the zoom inside the map to zoom in and out. Click and hold inside the map to move around the map.
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Figures for all members and clinical contacts (and for each area) are shown below the map.
Use the key: Click to see map
- Member
- Clinical Contact
- MDS Centre of Excellence
- Local Meeting
Further information about MDS Centres of Excellence
Centre of Excellence status is attributed by the American MDS Foundation. They assess each hospital who wishes to apply according to the strict criteria below. The physicians working in those hospitals have a specific dedicated interest in MDS and have many years of experience treating all the different sub-types of the condition.
To be recognized as a Centre of Excellence, a hospital must have:
- An established university (or equivalent) program
- Recognized morphologic expertise in MDS
- Available cytogenetics and/or molecular genetics
- Ongoing research, including Institutional Review Board-approved clinical trials
- Documentation of peer-reviewed publications in the field
Hospitals interested in applying for COE status must contact the MDS Foundation Centres-of-excellence
For contact details of MDS Centres of Excellence in the UK click here
Summer 2012 MDS UK Members and Clinical Contacts: Figures
| Local Group Area | Number of Members | Number of Clinical Contacts | Total |
|---|---|---|---|
| All | 622 | 195 | 817 |
| Aberdeen Area | 6 | 3 | 9 |
| Belfast Area | 1 | 1 | 2 |
| Birmingham – Midlands | 29 | 17 | 46 |
| Bristol – Cardiff – Weston-super-Mare | 40 | 15 | 55 |
| Cambridge Area | 67 | 9 | 76 |
| Dublin Area | 24 | 4 | 28 |
| Essex | 21 | 6 | 27 |
| Galway | 2 | 0 | 2 |
| Glasgow – Edinburgh | 22 | 16 | 38 |
| Leeds – York | 58 | 20 | 78 |
| Liverpool – Merseyside | 27 | 22 | 49 |
| London | 138 | 42 | 180 |
| Newcastle Area | 19 | 9 | 28 |
| Oxford Area | 37 | 8 | 45 |
| Plymouth – Exeter | 21 | 4 | 25 |
| Poole – Southampton – Bournemouth | 72 | 9 | 81 |
| Sussex | 38 | 10 | 48 |