Latest News
- Dept. of Health Survey: What matters about the hospital environment?
An opportunity for MDS patients and carers to fill in the Department of Health Survey; to have your say about what’s important and what really matters to you about the hospital environment.
- Introducing our new patrons
We are delighted to introduce two eminent patrons to the MDS UK Patient Support Group: Professor Ghulam Mufti – Professor of Haematology at King’s College Hospital in London, and Lord Tariq Ahmad – The Lord Ahmad of Wimbledon.
- MDS UK Newsletter Vol 2
Volume 2 of our newsletter including updates, clinical news, patient inputs and more.
- ASH 2011 Conference Highlights
Dr Austin Kulasekararaj, Haematologist Consultant at King’s College Hospital London, summarises the highlights of The American Society of Haematology (ASH) Conference 2011.
- Scientists Map Genetic Evolution Of Leukaemia Through MDS Patients
An article from the Washington University in St. Louis, School of Medicine that deals with the need to develop cancer drugs that target specific gene mutations that develop in MDS.
- Scientific Updates – Articles March 2012
A selection of articles from the MDS Beacon Website highlighting results of recent MDS related research, including news about Vidaza.
- Rare Disease Day 29th February – BBC Online article
For Rare Disease Day, BBC Online has included the story of an MDS patient – Patricia Ellis. See link.
- May 2012 Windsor Walk
Please join us on the Windsor Walk on Sunday 13th May 2012. Enjoy the day out and pick-nick, bring friends, family, children, grand-children, neighbours, dogs – and get sponsored to walk to raise funds for MDS UK. We need you!
- Royal Parks Foundation Half-Marathon – ballot open until 26th Jan – hurry
Calling all Marathon runners! The ballot to get a place is now open for the Royal Parks Foundation Half-Marathon. Would you like to do a sponsored run for MDS UK ?
- Brighton Marathon runners 2012
Anyone with a place in the Brighton Marathon 2012 ? Virgin Money Giving have a competition to win a potential £500 if the runner uses their fundraising page. Closing date is 26 Febr 2012. Please forward to runners.
- Dept. of Health Survey: What matters about the hospital environment?
Latest Events
Discussion Forums
The discussion forum is open to MDS patients, family, carers, health care professionals and anyone affected by MDS. Register and connect to others with your sub-type of MDS.
Visit the forums now
MDS UK Patient Support Group on facebook. Please share the link widely to raise awareness of MDS
If you use the internet to buy goods online please consider using this scheme, which allows you to raise funds at no cost to you.Fundraising and Awareness
Laura's Cycling Challenge - October 2012. Read more and share the sponsoring link please here
Tonbridge and Kent event, 27th January 2012. To celebrate the Year of the Dragon, Tonbridge School, Kent hosted a Charity Art Exhibition in their Tunnel Gallery to help raise awareness and funds for MDS patients. Read more here
Celgene has performed amazingly at the Berlin Marathon – with an entire team of runners – who managed to raise a very impressive amount of funds. Thank you! Read more here
Friends and family of my late husband Dan Crowley held a Golf Day in memory of him and to raise money for MDS. It was a very successful day and we were all amazed at how much money was raised. Read more here
More news on our amazing Judy Woolfenden, MBE – and MDS patient extraordinaire – who is off for a dog-sledding expedition in Sweden in a few weeks - as a special sponsored fundraiser. Read more here
David and Vikki drove to above the Arctic Circle in the depth of winter to raise money for MDS UK & Leukaemia Research. Read more about their adventure here
Judy Woolfenden - one of our amazing MDS patient in Warwickshire. More amazing plans coming up for 2012. Read more here
Graham Young climbed Mount Kilimanjaro in February to raise funds for both MDS UK and LLR. Read about his expedition here
Support for the Group
The MDS UK Patient Support Group is affiliated with the MDS Forum, the foremost UK organisation focused upon MDS, providing information and advice on the status and progress with MDS treatment in the UK. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.
The MDS UK Patient Support Group is affiliated with the MDS Foundation Inc., a multidisciplinary international organisation dedicated to sharing and improving MDS information and awareness between patients, globally.