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Now - this is truly a first for our very tame team MDS UK Patient Support Group A semi naked fundraiser :-)
This truly fantastic group - again...connected to the incredible Caitlin Limmer and Bearcat Running Club members - have been selling divine ice-creams in equally delightful outfits..... in support of MDS UK.
A whole £400 in an hour!!!
Massive thanks to all involved - Bridget Hunt, Marcello - and of course Gelateria Danieli Richmond Gelateria Danieli.
And the usual suspects....Caitlin Limmer, Moni Lau
We wholeheartedly encourage you to go enjoy an ice-cream there - I know I will very soon!!!
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A first at Gelateria Danieli today! I wanted to raise money for MDS charity for my Ultra Marathon next Saturday and so we had the Bearcat Running club in for 'Ice Cream Sundae'. Decided I would serve the ice cream in a red bikini as that is the colour of the charity. We raised £400 in less than an hour and even Marcello came to help me and removed his shirt. It was a GREAT morning. Thanks to my Ultra buddy Moni Lau in this photo. Roll on next Saturday!

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MDS UK Patient Support Group shared DKMS UK's video. ... See MoreSee Less

We've had some more fantastic celebrity support over the past few weeks!

We want to say a big thank you to all those that have helped to raise awareness about registering as a potential blood stem cell donor, as well as to all those that have registered themselves.


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MDS UK Patient Support Group shared their post. ... See MoreSee Less

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September is blood cancer awareness month. Here is a video clip from one of the pharma companies to illustrate this year's campaign - and emphasise the issues of living with an invisible disease. ... See MoreSee Less

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MDS UK Patient Support Group added an event. ... See MoreSee Less

MDS World Awareness Day 2016

October 25, 2016, 12:01am - October 25, 2016, 5:59pm

Marking MDS Day - internationally - with all of the MDS Alliance members around the globe.

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Bone Marrow Donation: All it takes to join the register is a bit of spit or a swab


Everything you need to know about MDS in our Patient Handbook


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Although we are a voluntary charity, we do need funds to enable us to expand and improve our service. If you are willing to assist with donations, we have the following options:

Support for the Group

The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

The MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national MDS support groups. The MDS Alliance is dedicated to sharing and improving MDS information and awareness between patients, globally.MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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