• Access to Treatment

    Equal and easy access to MDS drugs is crucial for all MDS patients. Here is a quick update on the MDS specific treatments available currently. Contact us if you are having problems.

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  • Alert - Shingles vaccine

    Latest advice from specialists regarding the shingles vaccine for MDS patients.

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  • Clinical staff – order our materials here

    Would you like to order information materials for MDS patients at your hospital? Please leave us a message with details of your order.

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Latest News

Upcoming Events

Past Events

Upcoming Fundraising Events

Past Fundraising Events

  • Aug15

    Dan Crowley Golf Day 2014

    UPDATE Fantastic news from Stella reporting a huge fundraising success at the Golf Day organised in memory of her more
  • Jun08

    Turks 10km Fun Run

    The Turks Head 10km Fun Run Sunday June 8th 2014 After the huge success of last year, The Bearcat Running Club and more

    Place: Riverside, Twickenham, Surrey TW1 3DN

  • May25

    3 Marathons for 3 Transplants – Round 3

    3 marathons for 3 transplants - now completed! MDS UK would like to congratulate Russell on his more

    Place: Edinburgh, Scotland

  • May20

    Lbs for £ !

    UPDATE Huge congratulation to Julie and Jackie on finishing their sponsored weight loss challenge! Well done girls more

    Place: Ashfield, Nottinghamshire

  • May18

    Windsor Walk 2014

    Windsor Great Park Walk Sunday 18th May 2014 Once again we join the Aplastic Anaemia Trust charity walk in the more

    Place: sl5 7sb

Support for the Group

The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

The MDS UK Patient Support Group is affiliated with the MDS Foundation Inc., a multidisciplinary international organisation dedicated to sharing and improving MDS information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214