Latest News
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Revlimid/Lenalidomide access in the UK
We need your help ! As announced recently - the drug Revlimid/lenalidomide will shortly be appraised by NICE to figure more -
Sharon Berger transplant update
Wonderful news - a donor was finally found for Sharon Berger who has been waiting since December for a transplant. We more -
EU drug approval for MDS sub-type del 5q
Great and long awaited positive news: Lenalidomide/Revlimid - the drug developed by pharma company Celgene has finally more -
Bone Marrow Donations in UK Parliament
Bone Marrow donations will be discussed tomorrow in parliament - 06/03/13 - at about 12.30pm - after Prime Minister more -
MDS and sickness leave issue – Ireland
We have been alerted about an issue in Dublin - regarding an MDS patient employed by Dublin Airport Authority. We more -
Rare Disease Day – 28th February
Rare Disease Day - 28th February Check what events took place all over the more -
MDS Foundation Newsletter – Winter Edition
The next MDS Foundation Newsletter is also available - should you have missed out on it recently. Please use link more -
Newsletter 3 is online!
Our third Newsletter is now available online - with a update on clinical and research news from the ASH Congress more -
Trials campaign – for publication of all results
The government has set up a Commons Select Committee to inquire into clinical trials and disclosure of data. To more -
Azacitidine research paper
Early research results about a better understanding of the way azacitidine works. Specifically about why azacitidine more -
Are you Fit to Spit ?
Just uploaded a new FIT TO SPIT clip - Beatbox style! All you young fit men out there - we still need your help. more -
DNA mapping for cancer
DNA mapping for cancer patients A new project is to be launched in the UK to sequence the DNA of cancer patients more
Past Fundraising Events
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May12
Windsor Great Park Walk – 12th May 2013
UPDATE - Latest details and walking teams! We have great pleasure in announcing the date of the 2013 Windsor Great morePlace: SL5 7SB
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Apr21
Bone Marrow Transplant Marathon Runner & Fundraiser !
Finisher photos - and first comments from Russell! Finished! With support team daughter Gee, wife Susan and son more -
Apr14
Brighton Marathon – Melanie Crowley
UPDATE: Melanie Many congratulations to Melanie Crawley - our marathon runner in Brighton. She managed a brilliant more
Support for the Group
The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.
The MDS UK Patient Support Group is affiliated with the MDS Foundation Inc., a multidisciplinary international organisation dedicated to sharing and improving MDS information and awareness between patients, globally.
MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214