MDS UK Patient Support Group
  • Providing continuous support to MDS patients and their carers.
  • Advancing public education in all aspects of MDS in the UK, through publications and the internet.
  • Promotes and supports scientific research into the treatment and care of MDS patients.
  • Latest News
    • Patient support group welcomes NICE decision to re-appraise Vidaza

      London, 26 July 2010 – The MDS UK Patient Support Group has welcomed the decision announced today by the National Institute for Health and Clinical Excellence (NICE) that it will re-appraise the use of Vidaza (azacitidine) in patients with higher-risk myelodysplastic syndrome (MDS)- a group of debilitating bone marrow diseases. Today’s decision by a NICE [...]

    • Need for Azacitidine featured in Daily Telegraph

      ‘Cancer experts from more than 30 hospitals across Europe have joined a campaign to get an expensive life-extending drug on the NHS’, writes Daily Telegraph’s medical correspondent Kate Devlin.

    • Please Support Our NICE Campaign Appeal

      On 4th March 2010, NICE published their final decision not to recommend the use of azacitidine (Vidaza) to treat patients with MDS in the NHS, despite its proven ability to extend patient survival and significantly improve quality of life…

  • Latest Events
    24
    Sept

    London MDS Patient and Family Forum

    Patient and family MDS Forum day – you can register your place as of now – or contact us for further information

    12
    Nov

    Cambridge MDS Patient and Family Forum

    Patient and family MDS Forum day – you can register your place as of now – or contact us for further information

    Media Coverage

    Our campaign to appeal the negative decision NICE decision on Azacitidine has gained media coverage.

  • Discussion Forums

    The discussion forum is open to MDS patients, family, carers, health care professionals and anyone affected by MDS.

    Visit the forums now


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Support for the Group

The MDS UK Patient Support Group is affiliated with the MDS Forum, the foremost UK organisation focused upon MDS, providing information and advice on the status and progress with MDS treatment in the UK. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

The MDS UK Patient Support Group is affiliated with the MDS Foundation Inc., a multidisciplinary international organisation dedicated to sharing and improving MDS information and awareness between patients, globally.